Complex Craniosynostosis

What is Complex Craniosynostosis

While there are several types of craniosynostosis, most of the cases that we treat only involve the fusion of a single cranial suture (the fibrous elements between the various boney plates).

However, in some cases, multiple sutures will fuse prematurely in the skull. When this happens, it is called “complex craniosynostosis,” and it must be treated differently than the other four types of cranial suture fusion.

Complex craniosynostosis is a rare condition, and it is often linked to some type of underlying genetic syndrome. If this goes untreated, it can lead to several different medical complications, and babies who are experiencing this condition – especially when it is related to one of those genetic syndromes – may also experience increased pressure inside the skull as the brain continues to grow and develop.

How We Treat Complex Craniosynostosis

Because this condition is very rare, and since it involves more than a single cranial suture, there are some treatment challenges. It will also likely require multiple operations and ongoing checkups and observations.

Additional Information

The Cleft & Craniofacial Institute of Utah is committed to providing the best care possible for your children. Contact us today to learn more about your options for a complex situation.

Our Expertise

Cleft Lip/Palate

 Cleft lips and palates are one of the most common birth anomalies that affect about 1/600 newborn babies in the United States and around 1/500 in the state of Utah.  Clefts can range from quite mild to fairly severe.  Most of the time they are an isolated anomaly, but are also associated with a number of gentic syndromes.  Depending on what structures are involved dictates the complexity of the treatment plan.   Our team works together with you to make a customized plan for  your baby.  Even the most severe of cases should be able to be treated with only a few surgical interventions by a well coordinated and efficient team.

 

 

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Craniosynostosis

The skull is made up of several different bones that are joined together by growth plates called "sutures."  Craniosynostosis is a condition where one or more of these sutures fuse prematurely causing an abnormal head shape, decreased cranial volume, and the possiblilty of raised intracranial pressure.  The treatment of craniosynostosis is surgical and the goals of surgery are to increase the volume of the skul and to correct the abnormal appearance of the head shape.  There are two methods of surgical correction: open vault reconstruction and strip craniectomy.  Dr. Griner's extensive training allows him to perform these complex procedures without the need for blood transfusions and spending only 1-2 nights in the hospital. 

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Syndromes

There are many syndromes that can affect the shape of the head and face and include Aperts, Crouzon, Pfieffer, Treacher Collins, and many others.  Most of these syndromes include many other complex anomalies and need to be treated in a coordinated approach in order to reduce the number of operations the child will need.  These syndromes are rare and require specialists that are very familiar with the intricacies of each syndrome.  Dr. Griner's unique training provided him with extensive experience with craniofacial syndromes and makes him the premier choice to guide the management of your child's needs in Utah.

 

 

 

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Ear Deformities

Ear deformities range from mild changes in shape to the complete abscence of an ear and deafness.  Mild deformities can be treated in the first few weeks of life while others will require reconstructive surgery and hearing aids.  No matter the severity, our specialists work together to provide normal appearance and improved hearing.

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From the Blog

Parenting a Cleft Child: Selecting a Surgeon

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Staged palate repairs

Staged palate repairs were implemented to try and reduce the chance of stunting the upper jaw growth and needing to have it surgically advanced later in life, while at the same time allowing normal speech to develop.  We know from several studies that the growth of...

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